A mom named Sara Lamb spent two years trying to tame her daughter’s unruly hair. Her daughter’s unbelievably frizzy hair made it impossible to comb and style. Then she discovered that her little girl had a rare genetic mutation that was causing her hair to be so out of control.
This is two-and-a-half-year-old Jaili Lamb. Jaili rocks a very unusual hair style. Her hair is bright white, it’s tangled and sticks straight up in the air. Recently her mom found out that she has a genetic mutation called "uncombable hair syndrome." Yes, it’s a thing.
This summer, Lamb and her husband sent DNA samples to the Institute for Human Genetics at the University of Bonn. The results revealed that Sara carries one of the three genes known to cause uncombable hair syndrome. It looks like they figured out what is making her hair stand on end.
Because of the results, the family has decided to accept that Jaili’s hair is impossible to tame. There will be no more products or efforts to style the hair. Her momma said, “It's very strange but I love it.”
Lamb says that her daughter’s hair matches her personality. “She looks like a dandelion," she said. “She has a quirky personality and her hair is an extension of that.”
When kids have uncombable hair syndrome, they have regular baby hair.
Lamb explained, “When Jaili was little she had typical baby hair but then that fell out and this wiry, coarse hair started coming in. At first I thought there might be something wrong with her diet because her hair was so brittle. She was breastfeeding until she turned two so I thought it was something I was doing.”
Andrew Messenger, professor of dermatology at the University of Sheffield, said, “Uncombable hair syndrome is a rare inherited hair problem. Recent research from Germany has shown that uncombable hair syndrome is due to alterations, known as mutations, in three genes involved in producing hair proteins. In any individual only one of these genes needs to be abnormal to cause uncombable hair but the result is the same whichever of the three genes is affected.”
According to Messenger, there is hope! While there is no medical treatment for uncombable hair syndrome, it is known to improve with age! So, Jaili and all the little girls and boys out there like her, keep living your adorable little lives! Your hair will get better with age. In the meantime, keep rocking the Einstein because it is looking good on you.